Why Access2Research Matters For Patients
(guest post by Cameron Neylon)
As a patient or patient advocate you may be wondering whether this petition is really for you. After all the NIH mandate does a pretty good job of getting you access to the research you need.
There are three good reasons why this petition still matters for patients and their supporters.
1) There is much health research carried out beyond the NIH by other US Federal agencies. A lot of the basic research on biology relevant to disease is funded by the National Science Foundation. Much of the important structural work that underpins drug design and optimisation is carried out at National Laboratories funded by the Department Of Energy. Indeed, the Human Genome Project began in the DoE. And a lot of the most important research lies between these different areas, funded by multiple agencies. A global mandate will ensure that the research critical for the health of you or your family doesn’t slip between the policy cracks between agencies.
2) Patients are the exemplar par excellence of the empowered citizen. If everyone is a patient, everyone is also concerned about the other big issues facing us today that can be informed by access to scientific information: energy; the environment; and the creation of jobs. Patients as a group have an opportunity to show the rest of the community what can be achieved when they are able to engage with high quality research information.
3) Research is a global enterprise. The majority of research relevant to your health is done outside the United Statues. Although the petition is a US action it will greatly help open access advocates to build momentum globally that means better access to all research, regardless of where it was carried out. The UK science minister recently described the need for coordinated global action as a major challenge in expanding access. A strong message from US patient advocates will make it easier to achieve global access.
But the real reason the petition is a patient issue is that this is just one round. This action is important for the NIH mandate in two ways. First by taking the policy ratchet one step further we protect the NIH mandate from any future actions that seek to roll it back, such as the Research Works Act. Secondly by demonstrating the power and depth of public opinion we are in a much better position to take the argument for public access to policy makers globally. We won’t win that in this round, but by winning this round we put ourselves in a much stronger position for the next one.
10,000 and counting
Thanks to Allyna W, the Access2Research Petition hit 10,000 signatories after 50 hours and 10 minutes live on the White House’s We The People petition site.
Read the context. Take a stand for access to taxpayer funded research. Sign the petition.
Video about the Access2Research petition from SPARC. Sign it now.
Sign The Petition - Repost
Sign the Access2Research petition at the White House website. More than 8,000 people have already done it. We’re asking for about five minutes of your time.
Sign the petition to require free access over the Internet to journal articles arising from taxpayer-funded research. This will require you to create an account at the White House petition website, confirm the account by clicking on a link in your email, and then sign the petition itself.
Tell the world. Post this site to reddit, to Slashdot, or anywhere else you participate in an online community. Submit to Boing Boing. Post links to the petition on your Tumblr, tweet about the petition, like us on Facebook - and ask your friends and family to take action, too.
25,000 signatures in 30 days gets an official Administration response. We want to hit that number - blow it out of the water - to escalate this issue inside the White House. We believe the idea of requiring free access has support but is stuck. This could well be the event that gets it through.
First #OA Monday Progress
Got about two hours left in the first #OAMonday, but amazing progress so far.
Don’t forget to sign the petition. And read the context.
Fake Elsevier Weighs In
This video was made by Fake Elsevier and tweeted early on in #OAMonday. Don’t forget to sign the petition. And read the context.
Sign The Petition
Sign the Access2Research petition at the White House website.
We’re asking for about five minutes of your time.
Sign the petition to require free access over the Internet to journal articles arising from taxpayer-funded research. This will require you to create an account at the White House petition website, confirm the account by clicking on a link in your email, and then sign the petition itself.
Tell the world. Post this site to reddit, to Slashdot, or anywhere else you participate in an online community. Submit to Boing Boing. Post links to the petition on your Tumblr, tweet about the petition, like us on Facebook - and ask your friends and family to take action, too.
25,000 signatures in 30 days gets an official Administration response. We want to hit that number - blow it out of the water - to escalate this issue inside the White House. We believe the idea of requiring free access has support but is stuck. This could well be the event that gets it through.
UPDATE 9:00PM May 20: Please feel free to use any of these banners on a website if you’d like to add your voice that way. Link them directly to http://wh.gov/6TH so that anyone clicking through gets to the petition.
